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CMMIT Consumer Advisory Group

Do you have a lived experience of a rare genetic disease, diabetes, cancer or other illness, such as a neuromuscular or neurological condition? Would you like to make a difference to research in WA?

About the project/vacancy

The Centre of Molecular Medicine and Innovative Therapeutics (CMMIT) at Murdoch University is forming a Consumer Advisory Group to assist researchers in WA with advice and input on current and future research projects.

CMMIT focus on translational research where findings from the laboratory are translated into diagnostics and treatments with direct benefits for patients. Forming a Consumer Advisory Group will allow CMMIT to have contact with people with lived experience who will help to inform the way CMMIT’s conducts its research.

There may also be opportunity for you to assist CMMIT with their grant applications and promotional activities.

About the position

A CMMIT Consumer Advisory Group member will attend 1 – 2 face to face meetings per year. The meetings will include updates from CMMIT’s research groups, with the opportunity to provide input and feedback on their projects. Assistance and input may also be required for grant applications and potential media opportunities.

What am I expected to do?

  • Attend in person meetings 1 – 2 times per year (as meetings are required)
  • Receive updates from CMMIT researchers and provide input to the research project, or potential research area
  • If willing, CMMIT would also like to put the Consumer Advisory Group members forward for potential media opportunities or community engagement initiatives

What skills or experience do I need?

Lived experience of a rare genetic disease, diabetes, cancer, a neuromuscular or neurological condition - this includes (but is not limited to): -

  • Parkinson’s
  • Muscular Dystrophy
  • Motor Neurone Disease / Amyotrophic Lateral Sclerosis (ALS)
  • Myositis
  • Multiple Sclerosis
  • Pompe disease
  • Blood disorders
  • Diabetes
  • Huntington’s Disease
  • Brain injury
  • Cardiovascular disease
  • Kidney disease
  • Stroke
  • Retinitis Pigmentosa
  • Cystic Fibrosis
  • Cancer (any type)

Carers or immediate family members of a person with MND or Alzheimer’s disease are also welcome to apply.

How long am I expected to be involved?

As meetings will only take place when required, CMMIT are expecting to hold 1 – 2 meetings per year. For CMMIT to gain the most out of your experience they are asking Consumer Advisory Group members to be involved for a minimum of 24 months. Your participation will not be diminished if for any reason you may need to leave the Consumer Advisory Group before the full 24 months is completed.

Where will meetings be held?

At the Centre for Molecular Medicine and Innovative Therapeutics (CMMIT, Murdoch University) and potentially via Zoom if necessary.

What support is offered?

An honorarium payment of $35 per meeting, as well as parking and refreshments provided during the face to face meetings.

 

*If you would like to apply for this opportunity please register your interest on this website or if you have any issues, you can contact the CCI Program directly on (08) 6151 1071 or via email at admin@cciprogram.org

Applications close: 25 September 2020

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